Hickman Line #3
A Hickman line is a small silicone tube that passes through the skin on your chest and enters a main vein in your neck. The aim is to give easy long term access to your vascular system for infusing fluids or medications. In 2010 I developed gastroparesis and lost the ability to eat food, or […]
A blog post written by AI software
Recently on Facebook I’ve been seeing adverts for AI (artificial intelligence) software that claim the software could write blog posts for me. I’m not interested in replacing myself with software, but I was a bit intrigued. I went to the ‘ChatGPT’ website and made this request: ‘Write a blog post about living with Ehlers-Danlos Syndrome’. […]
TPN and Blood Tests
I started 2022 planning to write one blog post per month. I posted one in January, but then I got side-tracked by another EDS project, some building work done in my flat, turning 50 years old 😳😥, the World Cup, Christmas, and here we are 14 months later and I’m finally writing my blog again. […]
COVID-19 Update
Thankfully, so far in this dreadful and tragic pandemic I haven’t contracted Covid-19, which is a big relief. However, the actions I’ve taken trying to avoid the virus have changed my life a lot. Due to being fed intravenously and having EDS / POTS, I’m considered to be ‘clinically extremely vulnerable’ to the virus. I live […]
My Summer Holiday …in Hospital
Did you enjoy the lovely hot weather we had a few weeks ago? I enjoyed the sun but unfortunately I became dehydrated, which led to a kidney infection and a couple of days in hospital. I should have managed the situation better, but controlling your hydration levels in 80+ degrees heat when you can’t drink […]