Tonight at 11pm on the Community channel you can see ‘Issues With My Tissues’ a documentary which follows the incredibly brave journey of Lara Bloom, an Ehlers Danlos Syndrome Hypermobility type sufferer, as she attempts to complete the London Marathon. The program also features other people with EDS and their families discussing the many varied problems they face. From the joint, cardiovascular and digestive problems common with Hypermobility type, to the sometimes fatal complications of Vascular type.
Professor Rodney Grahame, an exceptionally nice man and specialist in hypermobility, also appears in the program. Professor Grahame diagnosed me with EDS Hypermobility type some 14 years ago. I’ve already seen the program and found it both moving and inspiring, but I’m rather biased. Why not tune in and see for yourself?
Thank you to everyone involved in the documentary for helping raise awareness of our condition. Also very very well done to Lara Bloom, extraordinary!
***UPDATE***: You can now see the program at any time on Youtube: ‘Issues With My Tissues’ on Youtube. You can next see ‘Issues With My Tissues’ on the Community Channel on 26th April at 10pm.
You can find the Community Channel on the following channels: Sky Channel 539, Virgin Media Channel 233, Freesat Channel 651, Freeview Channel 63 (SD) and 109 (HD).
The documentary was made with the help of Ehlers-Danlos Support UK. They have recently had two appeals for funds:
If you would like to help EDS-UK find the gene for EDS Hypermobility type, please text EDS3H to 70300 to donate £3. – (I’ve tried it myself. It does work!)
If you would like to help the charity to support people with Vascular type EDS, please text EDS3V to 70300 to donate £3.
‘Help Make Our Invisible Visible’ – Ehlers Danlos Support -UK.
A Reluctant Contortionist
January 28, 2015 @
4:25 pm
Thank you. – No offers yet unfortunately. If I could choose the subject of my documentary, I’d go with ‘EDS sufferer gets signed by Spurs’. Or even better ‘EDS sufferer gets made bionic’. That could go a bit over budget though. According to this program I saw it costs about six million dollars. x
This is a fascinating documentary about a brave woman. Prof Grahame’s contributions are very useful and I learned a lot. Many thanks to the Community Channel for providing the opportunity.
A Reluctant Contortionist
January 29, 2015 @
6:22 pm
It’s an amazing achievement. I wish I’d done something similar when I could still walk well. But as someone with the same condition I don’t like to think about how much pain she went through afterwards.
I haven’t seen Prof Grahame for a few years. He’s a lovely man and always fascinating to talk to, so it was great to see him in this. – What a great program. Well done to all involved.
Tonight at 11pm on the Community channel you can see ‘Issues With My Tissues’ a documentary which follows the incredibly brave journey of Lara Bloom, an Ehlers Danlos Syndrome Hypermobility type sufferer, as she attempts to complete the London Marathon. The program also features other people with EDS and their families discussing the many varied problems they face. From the joint, cardiovascular and digestive problems common with Hypermobility type, to the sometimes fatal complications of Vascular type.
January 27, 2015 @ 2:03 pm
Sounds brilliant, I’ll be setting my telly-box to record. When are you getting your own documentary and what’s the angle?! xxx
January 28, 2015 @ 4:25 pm
Thank you. – No offers yet unfortunately. If I could choose the subject of my documentary, I’d go with ‘EDS sufferer gets signed by Spurs’. Or even better ‘EDS sufferer gets made bionic’. That could go a bit over budget though. According to this program I saw it costs about six million dollars. x
January 29, 2015 @ 3:04 pm
This is a fascinating documentary about a brave woman. Prof Grahame’s contributions are very useful and I learned a lot. Many thanks to the Community Channel for providing the opportunity.
January 29, 2015 @ 6:22 pm
It’s an amazing achievement. I wish I’d done something similar when I could still walk well. But as someone with the same condition I don’t like to think about how much pain she went through afterwards.
I haven’t seen Prof Grahame for a few years. He’s a lovely man and always fascinating to talk to, so it was great to see him in this. – What a great program. Well done to all involved.
February 15, 2015 @ 10:30 pm
Will definitely be watching this. xx
February 16, 2015 @ 5:11 pm
Thank you. Have a lovely day tomorrow! x