I first started struggling with mobility in my late twenties. I injured both my ankles at the same time and suddenly it was a problem just getting around the house. In the few years afterwards, I added knee and hip injuries and several problems with my feet and toes. Despite endless physiotherapy, none of those […]
About a year ago I was diagnosed with osteoporosis. It’s a common condition among people with EDS as joint pain can make it difficult to exercise and inactivity can lead to weak bones. I wrote a blog post at the time which explained the issues involved called ‘Dem Bone Scans’. Since being diagnosed I’ve had […]
When I started building this website I looked carefully at the latest research into EDS as I wanted the information on the site to be as accurate as possible. I read many medical papers, some of them very interesting, some rather dull, but there was only one paper that really stuck in my mind. The paper proposes […]
PINNT is a support group for people receiving artificial nutrition. It is run by patients and was established over 25 years ago. PINNT is now a national charity providing mutual support and understanding to hundreds of adults and children and their families adapting to life on home artificial nutrition. As I receive both enteral and […]
Regular readers of this blog (all 3 of you 🙂 ) may remember that last year I published a list of new year’s resolutions (click HERE to read the article). So I should start 2016 with an update on how I got on. 1, Walking Unfortunately I made no lasting progress, despite a lot of effort. […]