When I started building this website I looked carefully at the latest research into EDS as I wanted the information on the site to be as accurate as possible. I read many medical papers, some of them very interesting, some rather dull, but there was only one paper that really stuck in my mind. The paper proposes […]
PINNT is a support group for people receiving artificial nutrition. It is run by patients and was established over 25 years ago. PINNT is now a national charity providing mutual support and understanding to hundreds of adults and children and their families adapting to life on home artificial nutrition. As I receive both enteral and […]
Regular readers of this blog (all 3 of you 🙂 ) may remember that last year I published a list of new year’s resolutions (click HERE to read the article). So I should start 2016 with an update on how I got on. 1, Walking Unfortunately I made no lasting progress, despite a lot of effort. […]
In my very first post ‘Hello World’ I said that I would write this blog for a year, but if I wasn’t getting much interest I would then turn it into a Star Wars fan site. Well, with a hotly anticipated new Star Wars film just 3 weeks away, a fan site is very tempting! […]
The charity Ehlers Danlos Support UK publish a magazine titled ‘Fragile Links’. I wanted to write something for the magazine to share some of my experiences living with EDS, (and to publicise my blog a little 🙂 ). My story spans over two decades, which would have made for a very long article. So I […]