There are a number of side effects of having Ehlers Danlos Syndrome: grumpiness, laziness, cynicism towards the entire medical establishment, and also unfortunately weak bones. EDS causes joint pain… which makes it hard to exercise… and inactivity over a long period can cause your bones to waste and get weaker. I’ve had joint problems for […]
Ehlers Danlos Syndrome
Faulty ‘Contact’ Page! Sorry…
A friend asked me yesterday why I hadn’t replied to the email she sent me on my blog. I was surprised as I hadn’t received an email from her, or in fact from anyone through my blog since it launched last November. I’ve had plenty of comments but no emails at all. I thought I’d […]
‘Issues With My Tissues’ Documentary
Tonight at 11pm on the Community channel you can see ‘Issues With My Tissues’ a documentary which follows the incredibly brave journey of Lara Bloom, an Ehlers Danlos Syndrome Hypermobility type sufferer, as she attempts to complete the London Marathon. The program also features other people with EDS and their families discussing the many varied problems they […]
My New Year’s Resolutions
Is it too late for New Year’s resolutions? I hope not. If you read my last post ‘Twelve Days of Christmas …in hospital’ you’ll know I have a pretty good excuse. Also by writing these in mid January free from a New Year’s eve hangover and the mindless optimism of the first few days of […]
Twelve Days of Christmas …in hospital
Sorry for the lack of updates recently. I did plan to do a couple of posts before Christmas but I got a little, er side tracked. I’ve always really loved Christmas. Not just the day itself, but the preparation, the anticipation, singing along to The Pogues, decorating the tree, wrapping presents, the whole daft tinselly […]