The ’12-24′ film has been nominated for The Charity Film Awards! We made the film as part of a fundraising project for research into the benefits of nutrition on EDS, supported by the charities EDS UK and The Ehlers-Danlos Society. You can read details about the project and how it began here (link).
Last year over 400 charities entered the awards, over 60,000 members of the public voted and about 10% donated to a cause. So it was great news to be nominated and we’re working hard on social media to try to encourage votes for our film.
My father and I both worked very hard on the film. It was fun to work on the project together, although it led to a few ‘creative differences’. Thankfully they were all resolved easily by my father realising he was wrong (I hope he reads this! ?)
You can watch the 12-24 film, and vote, on The Charity Film Awards website. Here’s a link to our voting page (link). We’d be very grateful for every vote. Voting closes in just two days, on Friday 14th December! If you’d like to support our nomination you could also post a link on your own social media pages.
Below is the poster for our campaign, featuring Rudi, Ruby, Bethanie and Lucy, who star in the film and all struggle with Ehlers-Danlos Syndrome. Rudi was just 7 years old when the film was made.
I’m sorry this is such a short post. I’m currently busy working on a film to announce the fundraising total for the 12-24 project after one year. The film will be on the social media channels of both charities next week.
Thanks for reading and please vote! Ceri.
Helga & Phil
December 14, 2018 @ 4:10 pm
Great film Ceri – very professional. It obviously took a lot of hard work. Particularly having to work with your Dad!
Good luck for the award – you deserve it.
And it’s good to see you back blogging, we’ve missed you.
A Reluctant Contortionist
December 17, 2018 @ 10:42 pm
Hi Helga and Phil.
Thanks for your lovely comment. Don’t tell my Dad, but it’s actually been really nice working on a project with him. It’s also worked very well. The fundraising group we formed has raised a lot of money and the research will hopefully start early next year. – We did argue about the film a lot though!
The one downside of the project is I haven’t had time to write my blog. I’ll hopefully have more time next year though.
The finalists in the Charity Film Awards are announced in January, so look out for a post about that, hopefully a very happy one!
Best wishes, Ceri.
Alisha Styer
January 20, 2019 @ 2:09 am
Actually I have a question.. Is severe curvature of the back a possible sign of EDS?
A Reluctant Contortionist
January 26, 2019 @ 4:34 pm
Hi Alisha,
Sorry to be slow replying to your message, I wanted to look into this for you. The most obvious signs of EDS are hypermobile joints and stretchy skin. There is an association between curvature of the spine and EDS, please read the information in these links: (ref) (ref).
Good luck seeking a diagnosis.
Best wishes, Ceri.