I’ve been physically incapable of work since I was in my early twenties. Obviously I’d have far far preferred to be healthy and earning money, but you need to feed and clothe yourself and I’ve always had health related expenses too, so since then I’ve had no choice but to claim state benefits. I’m hardly proud […]
8-14th August was Home Artificial Nutrition Week, organised by the PINNT charity. As someone who has had his life saved twice by different forms of artificial nutrition I should have been fully behind this campaign, but I’m over three weeks late writing this article, sorry! My excuse is good though, I’ll get to that later. […]
I first started struggling with mobility in my late twenties. I injured both my ankles at the same time and suddenly it was a problem just getting around the house. In the few years afterwards, I added knee and hip injuries and several problems with my feet and toes. Despite endless physiotherapy, none of those […]
About a year ago I was diagnosed with osteoporosis. It’s a common condition among people with EDS as joint pain can make it difficult to exercise and inactivity can lead to weak bones. I wrote a blog post at the time which explained the issues involved called ‘Dem Bone Scans’. Since being diagnosed I’ve had […]
When I started building this website I looked carefully at the latest research into EDS as I wanted the information on the site to be as accurate as possible. I read many medical papers, some of them very interesting, some rather dull, but there was only one paper that really stuck in my mind. The paper proposes […]