I started 2022 planning to write one blog post per month. I posted one in January, but then I got side-tracked by another EDS project, some building work done in my flat, turning 50 years old 😳😥, the World Cup, Christmas, and here we are 14 months later and I’m finally writing my blog again. […]
Thankfully, so far in this dreadful and tragic pandemic I haven’t contracted Covid-19, which is a big relief. However, the actions I’ve taken trying to avoid the virus have changed my life a lot. Due to being fed intravenously and having EDS / POTS, I’m considered to be ‘clinically extremely vulnerable’ to the virus. I live […]
Did you enjoy the lovely hot weather we had a few weeks ago? I enjoyed the sun but unfortunately I became dehydrated, which led to a kidney infection and a couple of days in hospital. I should have managed the situation better, but controlling your hydration levels in 80+ degrees heat when you can’t drink […]
I’m writing this article feeling dizzy, hot, and sick, plus I’m shaking, sweating and feeling a bit confused. The cause of these unpleasant but temporary symptoms is rebound hypoglycaemia. I doubt many people have heard of that term, so despite my confusion I’m going to try to explain it, and how someone who can’t eat […]
November 2020 was the tenth anniversary of when I lost the ability to eat. It was an odd landmark in my life which I didn’t mention to anybody, but it has been on my mind so I thought I’d try to write a blog post about how I feel about it, and how my body […]