The month of May is National Pet Month, Bicycle Month, Ehlers-Danlos Syndrome Awareness Month, and National Osteoporosis month. I’d like to write a topical article about my amazing pet that can ride a bike, but unfortunately it wouldn’t be true. I don’t own a pet, let alone a bike riding one. I do however have […]
A Hickman line is a small silicone tube that passes through the skin on your chest and enters a main vein in your neck. The aim is to give easy long term access to your vascular system for infusing fluids or medications. In 2010 I developed gastroparesis and lost the ability to eat food, or […]
I started 2022 planning to write one blog post per month. I posted one in January, but then I got side-tracked by another EDS project, some building work done in my flat, turning 50 years old 😳😥, the World Cup, Christmas, and here we are 14 months later and I’m finally writing my blog again. […]
Thankfully, so far in this dreadful and tragic pandemic I haven’t contracted Covid-19, which is a big relief. However, the actions I’ve taken trying to avoid the virus have changed my life a lot. Due to being fed intravenously and having EDS / POTS, I’m considered to be ‘clinically extremely vulnerable’ to the virus. I live […]
Did you enjoy the lovely hot weather we had a few weeks ago? I enjoyed the sun but unfortunately I became dehydrated, which led to a kidney infection and a couple of days in hospital. I should have managed the situation better, but controlling your hydration levels in 80+ degrees heat when you can’t drink […]