November 2020 was the tenth anniversary of when I lost the ability to eat. It was an odd landmark in my life which I didn’t mention to anybody, but it has been on my mind so I thought I’d try to write a blog post about how I feel about it, and how my body […]
Are you enjoying the coronavirus lockdown? Surprisingly, I know quite a few people who are. For some it’s given them unexpected time off work, time with their family, and they’ve been doing activities they haven’t had time for for years. But for others it’s been a truly awful period. Many people are miserable and scared, […]
In 2015 I was diagnosed with osteoporosis, which is a common side effect of living with Ehlers-Danlos Syndrome. EDS causes joint pain, which makes it difficult to exercise, and inactivity over many years can lead to weak bones. I was diagnosed after a bone scan, which is a brief non-invasive process that measures a person’s […]
Five years ago I started writing this blog. My first post ‘Hello World’ talked optimistically about raising awareness of EDS, and sharing my story to help others with the condition. I committed to writing the blog for a year and then to decide if I was achieving anything. If not, I joked I would turn […]
In 2016 I wrote a blog post titled ‘Could Nutritional Supplements Improve the Symptoms of EDS?‘ It’s the most viewed post on this site and has generated the most comments and emails by far. There is no treatment for EDS, so I was very intrigued by the idea that supplements could reduce symptoms. I sent […]