The ’12-24′ film has been nominated for The Charity Film Awards! We made the film as part of a fundraising project for research into the benefits of nutrition on EDS, supported by the charities EDS UK and The Ehlers-Danlos Society. You can read details about the project and how it began here (link). Last year […]
Hello! Sorry (again) for not posting anything for so long. I have limited free time and energy each day, and currently I’m busy working on the 12-24 campaign. Hopefully you’ve all heard about the campaign by now, if not then I haven’t been doing my job very well! The 12-24 campaign is raising money to research […]
Hello again! Firstly, I’m really sorry I haven’t posted anything for so long. I have limited spare time and energy and I’ve been concentrating on a different EDS project instead. Hopefully you’ll agree it was worth taking a break for. About 18 months ago I wrote a blog post titled ‘Could Nutrition Supplements Improve the […]
Allergy testing has been on my ‘to-do’ list for about 20 years. I’ve always suspected that I’m allergic to pollen and maybe milk too. When I was able to eat I used to avoid dairy products as they made me feel ill, and in my youth I was regularly prescribed an inhaler for hay fever. […]
As I’ve mentioned many times on this site, I can’t eat normal food so instead liquid food is pumped into my body through tubes. Unfortunately those tubes have a limited lifespan and one of mine recently failed. A Hickman line is a long piece of silicone tubing which is inserted through the skin on your […]