Would you like to find a friend who knows exactly what it’s like to live with EDS? Well the Ehlers Danlos International Registry aims to help people do exactly that. ‘We want to facilitate the connection between one EDS sufferer and another, in hopes of helping people deal with their illness and the way it impacts their […]
There was an interesting discussion in the EDS-UK Men’s support Group on Facebook recently about local anaesthetics, and how they are less effective on people with EDS Hypermobility type. It’s a well known problem, but the reason they are less effective seems to be unknown and there’s currently no accepted method of managing the issue. […]
The Hypermobility Syndromes Association is a British charity which offers practical support and information for anyone with any of the hypermobility syndromes or people involved in their care. They publish a quarterly magazine called the ‘HMSA Journal’. I wrote an article for the ‘Have Your Say Section’ of the magazine which was published this week. I […]
I thought Buzzfeed only made trivial lists ranking celebrities cellulite etc. but apparently not. I just found their list of random facts about EDS, and it’s well researched and very good. I could have saved myself all the trouble of starting a blog and just put the link on my Facebook page! I have Hypermobility type […]
There are a number of side effects of having Ehlers Danlos Syndrome: grumpiness, laziness, cynicism towards the entire medical establishment, and also unfortunately weak bones. EDS causes joint pain… which makes it hard to exercise… and inactivity over a long period can cause your bones to waste and get weaker. I’ve had joint problems for […]