Five years ago I started writing this blog. My first post ‘Hello World’ talked optimistically about raising awareness of EDS, and sharing my story to help others with the condition. I committed to writing the blog for a year and then to decide if I was achieving anything. If not, I joked I would turn […]
In 2016 I wrote a blog post titled ‘Could Nutritional Supplements Improve the Symptoms of EDS?‘ It’s the most viewed post on this site and has generated the most comments and emails by far. There is no treatment for EDS, so I was very intrigued by the idea that supplements could reduce symptoms. I sent […]
Hello again! Firstly, I’m really sorry I haven’t posted anything for so long. I have limited spare time and energy and I’ve been concentrating on a different EDS project instead. Hopefully you’ll agree it was worth taking a break for. About 18 months ago I wrote a blog post titled ‘Could Nutrition Supplements Improve the […]
Allergy testing has been on my ‘to-do’ list for about 20 years. I’ve always suspected that I’m allergic to pollen and maybe milk too. When I was able to eat I used to avoid dairy products as they made me feel ill, and in my youth I was regularly prescribed an inhaler for hay fever. […]
As I’ve mentioned many times on this site, I can’t eat normal food so instead liquid food is pumped into my body through tubes. Unfortunately those tubes have a limited lifespan and one of mine recently failed. A Hickman line is a long piece of silicone tubing which is inserted through the skin on your […]