A Reluctant ContortionistA Reluctant Contortionist
A blog about being too bendy. To raise awareness of Ehlers Danlos Syndrome.
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    • Being diagnosed with POTS.
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    • Being fed through tubes.
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Are All Administration Sets Sterile?

December 18, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome, Parenteral Nutrition 2 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist, zebrastrong

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A slightly different style of blog post for you today. At a stretch you could call it ‘investigative journalism’, although some might think ‘paranoid rant’ is more accurate. Either way this issue was an annoying problem for me for a while so it seemed appropriate to write about it. Intrigued? Here’s my rant… Unfortunately I […]

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Applying for a Personal Independence Payment (PIP)

October 30, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 8 Comments Tags: EDS, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist, zebrastrong

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I’ve been physically incapable of work since I was in my early twenties. Obviously I’d have far far preferred to be healthy and earning money, but you need to feed and clothe yourself and I’ve always had health related expenses too, so since then I’ve had no choice but to claim state benefits. I’m hardly proud […]

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Home Artificial Nutrition Week – UPDATE

September 11, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome, Parenteral Nutrition 4 Comments Tags: EDS, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist, zebrastrong

Home Artificial Nutrition Week

8-14th August was Home Artificial Nutrition Week, organised by the PINNT charity. As someone who has had his life saved twice by different forms of artificial nutrition I should have been fully behind this campaign, but I’m over three weeks late writing this article, sorry! My excuse is good though, I’ll get to that later. […]

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My New Wheels…

June 26, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 6 Comments Tags: EDS, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist

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I first started struggling with mobility in my late twenties. I injured both my ankles at the same time and suddenly it was a problem just getting around the house. In the few years afterwards, I added knee and hip injuries and several problems with my feet and toes. Despite endless physiotherapy, none of those […]

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Dem Bone Scans – Update

May 1, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 6 Comments Tags: EDS, Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

Bone scan pic photshop

About a year ago I was diagnosed with osteoporosis. It’s a common condition among people with EDS as joint pain can make it difficult to exercise and inactivity can lead to weak bones. I wrote a blog post at the time which explained the issues involved called ‘Dem Bone Scans’. Since being diagnosed I’ve had […]

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Recent Posts

  • COVID-19 Update
  • My Summer Holiday …in Hospital
  • Rebound Hypoglycaemia
  • Ten Years Without Food
  • Coronavirus Lockdown
  • Dem Bone Scans – Update 2
  • 5 Years of ‘A Reluctant Contortionist’
  • The 12-24 Film has been Shortlisted for the Final!
  • The 12-24 campaign has raised £201,000!
  • 12-24 in The Charity Film Awards!
  • ‘The Big Bum-ble’ Sponsored Walk – Update
  • The 12-24 Film
  • Allergy Testing
  • A New Hickman Line
  • A Blog Makeover
  • Are All Administration Sets Sterile?
  • Applying for a Personal Independence Payment (PIP)
  • Home Artificial Nutrition Week – UPDATE
  • My New Wheels…
  • Dem Bone Scans – Update
  • Could Nutritional Supplements Improve the Symptoms of EDS?
  • An article for the PINNT Newsletter
  • Happy New Year!
  • One Year of ‘A Reluctant Contortionist’!
  • ‘Extra Time’

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