A Reluctant Contortionist
A blog about being too bendy. To raise awareness of Ehlers Danlos Syndrome.
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    • Being diagnosed with POTS.
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The 12-24 Film has been Shortlisted for the Final!

February 25, 2019 By A Reluctant Contortionist in Ehlers Danlos Syndrome Tags: 12to24, Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist

The 12-24 Film has been Shortlisted for the Final!

The 12-24 film has been shortlisted for the final of The Charity Film Awards! This means we did very well in the public vote. Thank you so much to everyone who voted, we’re very grateful. The Charity Film Awards have been great publicity for our campaign and have helped raise awareness of EDS.

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The 12-24 campaign has raised £201,000!

January 27, 2019 By A Reluctant Contortionist in Ehlers Danlos Syndrome Tags: 12to24, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist

The 12-24 campaign has raised £201,000!

In 2016 I wrote a blog post titled ‘Could Nutritional Supplements Improve the Symptoms of EDS?‘ It’s the most viewed post on this site and has generated the most comments and emails by far. There is no treatment for EDS, so I was very intrigued by the idea that supplements could reduce symptoms. I sent […]

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12-24 in The Charity Film Awards!

December 12, 2018 By A Reluctant Contortionist in Ehlers Danlos Syndrome Tags: Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist

12-24 in The Charity Film Awards!

The ’12-24′ film has been nominated for The Charity Film Awards! We made the film as part of a fundraising project for research into the benefits of nutrition on EDS, supported by the charities EDS UK and The Ehlers-Danlos Society. You can read details about the project and how it began here (link). Last year […]

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‘The Big Bum-ble’ Sponsored Walk – Update

June 17, 2018 By A Reluctant Contortionist in Ehlers Danlos Syndrome Tags: 12to24, EDS, Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist, zebrastrong

‘The Big Bum-ble’ Sponsored Walk – Update

Hello! Sorry (again) for not posting anything for so long. I have limited free time and energy each day, and currently I’m busy working on the 12-24 campaign. Hopefully you’ve all heard about the campaign by now, if not then I haven’t been doing my job very well! The 12-24 campaign is raising money to research […]

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The 12-24 Film

January 21, 2018 By A Reluctant Contortionist in Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome Tags: 12to24, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist, zebrastrong

Hello again! Firstly, I’m really sorry I haven’t posted anything for so long. I have limited spare time and energy and I’ve been concentrating on a different EDS project instead. Hopefully you’ll agree it was worth taking a break for. About 18 months ago I wrote a blog post titled ‘Could Nutrition Supplements Improve the […]

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Recent Posts

  • Hickman Line #3
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  • TPN and Blood Tests
  • COVID-19 Update
  • My Summer Holiday …in Hospital
  • Rebound Hypoglycaemia
  • Ten Years Without Food
  • Coronavirus Lockdown
  • Dem Bone Scans – Update 2
  • 5 Years of ‘A Reluctant Contortionist’
  • The 12-24 Film has been Shortlisted for the Final!
  • The 12-24 campaign has raised £201,000!
  • 12-24 in The Charity Film Awards!
  • ‘The Big Bum-ble’ Sponsored Walk – Update
  • The 12-24 Film
  • Allergy Testing
  • A New Hickman Line
  • A Blog Makeover
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  • Home Artificial Nutrition Week – UPDATE
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  • Dem Bone Scans – Update
  • Could Nutritional Supplements Improve the Symptoms of EDS?
  • An article for the PINNT Newsletter

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