Five years ago I started writing this blog. My first post ‘Hello World’ talked optimistically about raising awareness of EDS, and sharing my story to help others with the condition. I committed to writing the blog for a year and then to decide if I was achieving anything. If not, I joked I would turn […]
The 12-24 film has been shortlisted for the final of The Charity Film Awards! This means we did very well in the public vote. Thank you so much to everyone who voted, we’re very grateful. The Charity Film Awards have been great publicity for our campaign and have helped raise awareness of EDS.
In 2016 I wrote a blog post titled ‘Could Nutritional Supplements Improve the Symptoms of EDS?‘ It’s the most viewed post on this site and has generated the most comments and emails by far. There is no treatment for EDS, so I was very intrigued by the idea that supplements could reduce symptoms. I sent […]
The ’12-24′ film has been nominated for The Charity Film Awards! We made the film as part of a fundraising project for research into the benefits of nutrition on EDS, supported by the charities EDS UK and The Ehlers-Danlos Society. You can read details about the project and how it began here (link). Last year […]
Hello! Sorry (again) for not posting anything for so long. I have limited free time and energy each day, and currently I’m busy working on the 12-24 campaign. Hopefully you’ve all heard about the campaign by now, if not then I haven’t been doing my job very well! The 12-24 campaign is raising money to research […]