A Reluctant Contortionist
A blog about being too bendy. To raise awareness of Ehlers Danlos Syndrome.
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  • What is EDS?
  • What is POTS?
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    • Being diagnosed with POTS.
    • Being diagnosed with EDS.
    • Being fed through tubes.
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Dem Bone Scans – Update

May 1, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 6 Comments Tags: EDS, Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

Bone scan pic photshop

About a year ago I was diagnosed with osteoporosis. It’s a common condition among people with EDS as joint pain can make it difficult to exercise and inactivity can lead to weak bones. I wrote a blog post at the time which explained the issues involved called ‘Dem Bone Scans’. Since being diagnosed I’ve had […]

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Could Nutritional Supplements Improve the Symptoms of EDS?

April 10, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 31 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

Vitamin Bottles 3

When I started building this website I looked carefully at the latest research into EDS as I wanted the information on the site to be as accurate as possible. I read many medical papers, some of them very interesting, some rather dull, but there was only one paper that really stuck in my mind. The paper proposes […]

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An article for the PINNT Newsletter

January 31, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 2 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

PINNT Newsletter

PINNT is a support group for people receiving artificial nutrition. It is run by patients and was established over 25 years ago. PINNT is now a national charity providing mutual support and understanding to hundreds of adults and children and their families adapting to life on home artificial nutrition. As I receive both enteral and […]

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Happy New Year!

January 3, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 6 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

2016

Regular readers of this blog (all 3 of you 🙂 ) may remember that last year I published a list of new year’s resolutions (click HERE to read the article). So I should start 2016 with an update on how I got on. 1, Walking Unfortunately I made no lasting progress, despite a lot of effort. […]

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One Year of ‘A Reluctant Contortionist’!

November 29, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 14 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

First Birthday Graphis

In my very first post ‘Hello World’ I said that I would write this blog for a year, but if I wasn’t getting much interest I would then turn it into a Star Wars fan site. Well, with a hotly anticipated new Star Wars film just 3 weeks away, a fan site is very tempting! […]

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Recent Posts

  • TPN and Blood Tests (update)
  • EDS & Complementary / Alternative Therapies
  • Dem Bone Scans – Update 3
  • Hickman Line #3
  • A blog post written by AI software
  • TPN and Blood Tests
  • COVID-19 Update
  • My Summer Holiday …in Hospital
  • Rebound Hypoglycaemia
  • Ten Years Without Food
  • Coronavirus Lockdown
  • Dem Bone Scans – Update 2
  • 5 Years of ‘A Reluctant Contortionist’
  • The 12-24 Film has been Shortlisted for the Final!
  • The 12-24 campaign has raised £201,000!
  • 12-24 in The Charity Film Awards!
  • ‘The Big Bum-ble’ Sponsored Walk – Update
  • The 12-24 Film
  • Allergy Testing
  • A New Hickman Line
  • A Blog Makeover
  • Are All Administration Sets Sterile?
  • Applying for a Personal Independence Payment (PIP)
  • Home Artificial Nutrition Week – UPDATE
  • My New Wheels…

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