A Reluctant ContortionistA Reluctant Contortionist
A blog about being too bendy. To raise awareness of Ehlers Danlos Syndrome.
  • Blog
  • About
  • What is EDS?
  • What is POTS?
  • My Story
    • Being diagnosed with POTS.
    • Being diagnosed with EDS.
    • Being fed through tubes.
  • Gallery
  • Links
  • Contact

EDS Awareness Month – UPDATE

May 3, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome Tags: Ehlers Danlos Syndrome, POTS, Reluctant Contortionist

EDS awareness

May is Ehlers Danlos Syndrome Awareness Month, which is a worldwide promotion supported by all the EDS charities. This year EDNF (Ehlers Danlos National Foundation, a U.S. non-profit organisation) has launched a video contest for people with EDS to share their stories. Entries should start appearing soon on YouTube with the hashtag #EhlersDanlosStories and on […]

More

Buzzfeed’s 31 Random Facts About Ehlers Danlos Syndrome

April 22, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 4 Comments Tags: Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist

Buzzfeed 2

I thought Buzzfeed only made trivial lists ranking celebrities cellulite etc. but apparently not. I just found their list of random facts about EDS, and it’s well researched and very good. I could have saved myself all the trouble of starting a blog and just put the link on my Facebook page! I have Hypermobility type […]

More

Dem Bone Scans

March 15, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 11 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist

Bone scan pic photshop

There are a number of side effects of having Ehlers Danlos Syndrome: grumpiness, laziness, cynicism towards the entire medical establishment, and also unfortunately weak bones. EDS causes joint pain… which makes it hard to exercise… and inactivity over a long period can cause your bones to waste and get weaker. I’ve had joint problems for […]

More

Faulty ‘Contact’ Page! Sorry…

February 14, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 2 Comments

Homer 5

A friend asked me yesterday why I hadn’t replied to the email she sent me on my blog. I was surprised as I hadn’t received an email from her, or in fact from anyone through my blog since it launched last November. I’ve had plenty of comments but no emails at all. I thought I’d […]

More

‘Issues With My Tissues’ Documentary

January 27, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 6 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist

Simpsons TV small

Tonight at 11pm on the Community channel you can see ‘Issues With My Tissues’ a documentary which follows the incredibly brave journey of Lara Bloom, an Ehlers Danlos Syndrome Hypermobility type sufferer, as she attempts to complete the London Marathon. The program also features other people with EDS and their families discussing the many varied problems they […]

More

«< 4 5 6 7 8

Social

Follow me on:

Recent Posts

  • COVID-19 Update
  • My Summer Holiday …in Hospital
  • Rebound Hypoglycaemia
  • Ten Years Without Food
  • Coronavirus Lockdown
  • Dem Bone Scans – Update 2
  • 5 Years of ‘A Reluctant Contortionist’
  • The 12-24 Film has been Shortlisted for the Final!
  • The 12-24 campaign has raised £201,000!
  • 12-24 in The Charity Film Awards!
  • ‘The Big Bum-ble’ Sponsored Walk – Update
  • The 12-24 Film
  • Allergy Testing
  • A New Hickman Line
  • A Blog Makeover
  • Are All Administration Sets Sterile?
  • Applying for a Personal Independence Payment (PIP)
  • Home Artificial Nutrition Week – UPDATE
  • My New Wheels…
  • Dem Bone Scans – Update
  • Could Nutritional Supplements Improve the Symptoms of EDS?
  • An article for the PINNT Newsletter
  • Happy New Year!
  • One Year of ‘A Reluctant Contortionist’!
  • ‘Extra Time’

Email Updates

Sign up for our email updates

Search

  • Medical Information Disclaimer
  • External Links Policy
A Reluctant Contortionist
© A Reluctant Contortionist 2022
Powered by WordPress • Themify WordPress Themes

↑ Back to top