A Reluctant Contortionist
A blog about being too bendy. To raise awareness of Ehlers Danlos Syndrome.
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  • What is POTS?
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    • Being diagnosed with POTS.
    • Being diagnosed with EDS.
    • Being fed through tubes.
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A Blog Makeover

March 2, 2017 By A Reluctant Contortionist in Ehlers Danlos Syndrome 2 Comments Tags: EDS, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist, zebrastrong

A Blog Makeover

The sharp eyed among you may have noticed my blog looks a bit different today. I think I’m known as a stylish and contemporary kind of guy ?, but this style update was totally forced on me. The company who make the software for this blog decided to phase out some of their older products, […]

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Are All Administration Sets Sterile?

December 18, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome, Parenteral Nutrition 2 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist, zebrastrong

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A slightly different style of blog post for you today. At a stretch you could call it ‘investigative journalism’, although some might think ‘paranoid rant’ is more accurate. Either way this issue was an annoying problem for me for a while so it seemed appropriate to write about it. Intrigued? Here’s my rant… Unfortunately I […]

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Applying for a Personal Independence Payment (PIP)

October 30, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 8 Comments Tags: EDS, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist, zebrastrong

pip-south-park-new

I’ve been physically incapable of work since I was in my early twenties. Obviously I’d have far far preferred to be healthy and earning money, but you need to feed and clothe yourself and I’ve always had health related expenses too, so since then I’ve had no choice but to claim state benefits. I’m hardly proud […]

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Home Artificial Nutrition Week – UPDATE

September 11, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome, Parenteral Nutrition 4 Comments Tags: EDS, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist, zebrastrong

Home Artificial Nutrition Week

8-14th August was Home Artificial Nutrition Week, organised by the PINNT charity. As someone who has had his life saved twice by different forms of artificial nutrition I should have been fully behind this campaign, but I’m over three weeks late writing this article, sorry! My excuse is good though, I’ll get to that later. […]

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My New Wheels…

June 26, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 6 Comments Tags: EDS, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist

Timmy Wheelchair 8 300px

I first started struggling with mobility in my late twenties. I injured both my ankles at the same time and suddenly it was a problem just getting around the house. In the few years afterwards, I added knee and hip injuries and several problems with my feet and toes. Despite endless physiotherapy, none of those […]

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Recent Posts

  • TPN and Blood Tests (update)
  • EDS & Complementary / Alternative Therapies
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  • A blog post written by AI software
  • TPN and Blood Tests
  • COVID-19 Update
  • My Summer Holiday …in Hospital
  • Rebound Hypoglycaemia
  • Ten Years Without Food
  • Coronavirus Lockdown
  • Dem Bone Scans – Update 2
  • 5 Years of ‘A Reluctant Contortionist’
  • The 12-24 Film has been Shortlisted for the Final!
  • The 12-24 campaign has raised £201,000!
  • 12-24 in The Charity Film Awards!
  • ‘The Big Bum-ble’ Sponsored Walk – Update
  • The 12-24 Film
  • Allergy Testing
  • A New Hickman Line
  • A Blog Makeover
  • Are All Administration Sets Sterile?
  • Applying for a Personal Independence Payment (PIP)
  • Home Artificial Nutrition Week – UPDATE
  • My New Wheels…

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