‘A Rough Guide to Hospital’
The Hypermobility Syndromes Association is a British charity which offers practical support and information for anyone with any of the hypermobility syndromes or people involved in their care. They publish a quarterly magazine called the ‘HMSA Journal’. I wrote an article for the ‘Have Your Say Section’ of the magazine which was published this week. I […]
EDS Awareness Month – UPDATE
May is Ehlers Danlos Syndrome Awareness Month, which is a worldwide promotion supported by all the EDS charities. This year EDNF (Ehlers Danlos National Foundation, a U.S. non-profit organisation) has launched a video contest for people with EDS to share their stories. Entries should start appearing soon on YouTube with the hashtag #EhlersDanlosStories and on […]
Buzzfeed’s 31 Random Facts About Ehlers Danlos Syndrome
I thought Buzzfeed only made trivial lists ranking celebrities cellulite etc. but apparently not. I just found their list of random facts about EDS, and it’s well researched and very good. I could have saved myself all the trouble of starting a blog and just put the link on my Facebook page! I have Hypermobility type […]
Dem Bone Scans
There are a number of side effects of having Ehlers Danlos Syndrome: grumpiness, laziness, cynicism towards the entire medical establishment, and also unfortunately weak bones. EDS causes joint pain… which makes it hard to exercise… and inactivity over a long period can cause your bones to waste and get weaker. I’ve had joint problems for […]
Faulty ‘Contact’ Page! Sorry…
A friend asked me yesterday why I hadn’t replied to the email she sent me on my blog. I was surprised as I hadn’t received an email from her, or in fact from anyone through my blog since it launched last November. I’ve had plenty of comments but no emails at all. I thought I’d […]