A Reluctant Contortionist
A blog about being too bendy. To raise awareness of Ehlers Danlos Syndrome.
  • Blog
  • About
  • What is EDS?
  • What is POTS?
  • My Story
    • Being diagnosed with POTS.
    • Being diagnosed with EDS.
    • Being fed through tubes.
  • Gallery
  • Links
  • Contact

‘Issues With My Tissues’ Documentary

January 27, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 6 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist

Simpsons TV small

Tonight at 11pm on the Community channel you can see ‘Issues With My Tissues’ a documentary which follows the incredibly brave journey of Lara Bloom, an Ehlers Danlos Syndrome Hypermobility type sufferer, as she attempts to complete the London Marathon. The program also features other people with EDS and their families discussing the many varied problems they […]

More

My New Year’s Resolutions

January 18, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 14 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist

Millenium Eye Fireworks

Is it too late for New Year’s resolutions? I hope not. If you read my last post ‘Twelve Days of Christmas …in hospital’ you’ll know I have a pretty good excuse. Also by writing these in mid January free from a New Year’s eve hangover and the mindless optimism of the first few days of […]

More

Twelve Days of Christmas …in hospital

January 10, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 11 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, Reluctant Contortionist

Christmas Tree

Sorry for the lack of updates recently. I did plan to do a couple of posts before Christmas but I got a little, er side tracked. I’ve always really loved Christmas. Not just the day itself, but the preparation, the anticipation, singing along to The Pogues, decorating the tree, wrapping presents, the whole daft tinselly […]

More

Thank you Hannah Ensor

December 3, 2014 By A Reluctant Contortionist in Ehlers Danlos Syndrome 7 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist

A Reluctant Contortionist

 I have no artistic talent whatsoever, literally none. So when it came to making a header image for this blog I was rather stumped. I wanted to avoid drawing anything, so I bought a toy bendyman on eBay and photographed it in various silly positions which were supposed to show hypermobility. It was a fun idea, […]

More

Hello World!

November 22, 2014 By A Reluctant Contortionist in Ehlers Danlos Syndrome 32 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, POTS, Reluctant Contortionist

Planet Earth

Welcome to ‘A Reluctant Contortionist’, a blog about being too bendy. So why am I starting a blog? For a long time now I’ve wanted to do something to help the cause of Ehlers Danlos Syndrome (EDS). But what exactly? I’m not smart enough to find a cure. I have EDS so I can’t run […]

More

«‹ 6 7 8 9

Social

Follow me on:

Recent Posts

  • TPN and Blood Tests (update)
  • EDS & Complementary / Alternative Therapies
  • Dem Bone Scans – Update 3
  • Hickman Line #3
  • A blog post written by AI software
  • TPN and Blood Tests
  • COVID-19 Update
  • My Summer Holiday …in Hospital
  • Rebound Hypoglycaemia
  • Ten Years Without Food
  • Coronavirus Lockdown
  • Dem Bone Scans – Update 2
  • 5 Years of ‘A Reluctant Contortionist’
  • The 12-24 Film has been Shortlisted for the Final!
  • The 12-24 campaign has raised £201,000!
  • 12-24 in The Charity Film Awards!
  • ‘The Big Bum-ble’ Sponsored Walk – Update
  • The 12-24 Film
  • Allergy Testing
  • A New Hickman Line
  • A Blog Makeover
  • Are All Administration Sets Sterile?
  • Applying for a Personal Independence Payment (PIP)
  • Home Artificial Nutrition Week – UPDATE
  • My New Wheels…

Email Updates

Sign up for our email updates

Search

  • Medical Information Disclaimer
  • External Links Policy
A Reluctant Contortionist
© A Reluctant Contortionist 2025
Powered by WordPress • Themify WordPress Themes

↑ Back to top